Author name: Blog

Polyarthritis: Symptoms, Causes, and Effective Treatments for Long-Term Relief

Post Views: 649 Q-1) Could you briefly describe your story? A-1) Hey I am Ramuna. I was diagnosed with ‘’Polyarthritis” when I was half a year old. My right ankle doesn’t bend over, and my leg is small and thin. In my country Lithuania I was second with polyarthritis. Before I was diagnosed with polyarthritis …

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“But You Don’t Look Sick”: My Life with Rare and Invisible Illnesses

Post Views: 630 First off, thank you, Universe. Every day I wake up feeling blessed. Recovery isn’t linear, and neither is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection, resilience, and plenty of research. Living with the Unseen: The Fine Line Between Health and Illness …

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Fabry Disease India Story: Inspiring Journey of Courage and Hope

Post Views: 601 When we talk about rare diseases in India, Fabry Disease often remains hidden in the shadows. Yet, behind the statistics are real people, patients and families navigating pain. This is the story of Dr Divyansh. He is a young doctor whose journey with Fabry Disease shows us why awareness, early diagnosis, and …

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How Living with a Rare Disease Changed My Definition of Success: 7 Powerful Life Lessons

Post Views: 517 Sometimes the things we can’t change end up changing us. I sit here today with a heart full of gratitude for the strength to write this, for the breath that flows freely, and for the resilience that carried me through the chaos. Life threw curveballs I never saw coming, and yet, here …

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Myasthenia Gravis Explained: Symptoms, Treatments, and Real Patient Experience

Post Views: 138 Archith’s Note: I spoke to Oliver and decided to share his story. He showed great strength and honesty while speaking about his journey with Myasthenia Gravis. During our conversation, I was deeply moved by his resilience. The way he continues to live with dignity despite challenges is commendable. His words reminded me …

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Medical Drama

Isaacs’ Syndrome and Medical Circus: A Comedy of Chronic Conditions

Post Views: 637 Act One: Isaacs’ Syndrome Enters Stage Let’s set the scene: It’s 2014. I’m living a relatively normal life, probably complaining about slow Wi-Fi or the lack of good snacks in the pantry. Then, out of nowhere, my muscles start twitching like they’ve just discovered caffeine. I wasn’t dancing. I wasn’t exercising. I …

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9 Proven Mental Health Benefits of Video Game Therapy for Chronic Diseases

Post Views: 613 Archith This blogs comes from one of the most gaming-active countries in the world, Philippines. Stats say that nearly all internet users (about 75–86%) play video games, mostly on mobile devices. For most of us, video games are a pastime, a way to unwind, compete, or escape into another world. But for …

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From Scent to Sensitivity: 5 Reasons Perfume Became a No-Go in My Healing Journey

Post Views: 639 Gratitude. If I could choose one word to describe my outlook today, it’s that. Despite the unraveling diagnosis, the unpredictable symptoms, and the years of physical struggle, I’m still here, breathing, healing, and learning. And for that, I thank the Universe with all my heart. Every fragrance has a story. Mine came …

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