Will Tyson: A Heartfelt Advocate Will Tyson lives with a rare genetic heart disease called cardiomyopathy, just like his father, Mark. Their …
Archith At our platform, we believe the most powerful insights come not just from research and statistics, but from lived experience. Today, …
Archith Garry isn’t just a writer, he’s a survivor and a guide. Living with Hashimoto’s Thyroiditis, a chronic autoimmune condition, he knows …
Archith When we hear the word pancreas, most of us think of diabetes. But… Our pancreas is far more than a sugar …
Q-1) Could you describe your story from getting diagnosed to having been cured? A-1: I started experiencing Morgellons disease symptoms when I was …
Archith Louis is as brave as his name suggests, facing every challenge with remarkable courage. He lives with Morvan syndrome, a rare …
I’m Liam, father to a bright, funny, and determined girl named Orla. She’s 14 now, and if you met her, you’d probably …
Archith Living with a rare neurological condition called Kleine-Levin Syndrome (KLS) can often feel like walking an uncharted path where answers are …
When Jasper was born, I thought my life had found its brightest light. His tiny fingers curled around mine, and I whispered …
A Breath of Perspective When we think of incurable lung diseases, the first images that come to mind are oxygen masks, hospital …
Q-1) Could you briefly describe your story? A-1) Hey I am Ramuna. I was diagnosed with ‘’Polyarthritis” when I was half a …
When we talk about rare diseases in India, Fabry Disease often remains hidden in the shadows. Yet, behind the statistics are real …
Archith’s Note: I spoke to Oliver and decided to share his story. He showed great strength and honesty while speaking about his …
Archith This blogs comes from one of the most gaming-active countries in the world, Philippines. Stats say that nearly all internet users …
Q-1) Describe your story? A-1) I was unaware that I had a Cancerous Tumor. Let me tell you that a tumor is …
God has been kind to many of us. Instead of being grateful we never put an end to complaining. Today’s story is …
Archith I’m delighted to introduce Siddharth, a thoughtful writer from Uttarakhand, India, who lives with Autism Spectrum Disorder (ASD). In his beautifully …
When My Body’s Battery Runs Low Think about your phone. You charge it all night, but in the morning, it only shows …
Q-1) Could you describe your story? A-1) I am a middle-aged Black woman who has Lymphedema. It is swelling in an arm …
Archith’s Note: I’m pleased to introduce Viktor, a writer from Sweden who lives with Epilepsy. In his heartfelt article, “5 Surprising Ways …
Q-1) Could you briefly describe your story? A-1) I started noticing vibrations, under my skin, similar to a cell phone vibration, in …
Archith’s Note: Today, we welcome Diana, a resilient woman from the United States who lives with Parkinson’s Disease. It is a condition …
Q-1) Could you briefly describe your story? A-1) I started with severe foot pain in 1998 at age 25. I underwent routine …
Hi, I’m Jennifer, but most people call me Jenni. I’m not a doctor, not a scientist, and certainly not someone who ever …
Archith’s Note: We all have our own version of the COVID story. For me, as a patient with Isaacs’ Syndrome, the pandemic …
A Heart Attack at 28 Most people think heart disease is something that happens in old age. But for Aria, a 28-year-old …
My name is Megha, though I never could relate to it. It could have been anything. 🙂 I was diagnosed with Thalassemia a few …
Archith’s Note: Eric lives with Pernicious Anaemia, a rare autoimmune condition that affects the body’s ability to absorb vitamin B12. While managing …
Archith’s Note: From Bangalore, India, Nakul lives with Gastrointestinal Stromal Tumors (GISTs). It is a rare type of cancer that affects the …
Q-1) Could you briefly describe your story? A-1) I was diagnosed with POEMS Syndrome in November 2021. The symptoms were evident and …
Gratitude is a powerful emotion, especially when rooted in the healing process. Thank you, dear Universe, for walking beside me in every …
Q-1) Could you briefly describe your story from getting diagnosed to having been cured? A-1) After having my daughter, I was put …
Today we have someone who simply redefines motivation for many of us. His ability to start, persist, and then perform a task …
When Life Gets Stiff (Literally) What happens when you’re told you have an incurable disease? For most people, the word “incurable” feels …
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Huntington’s Disease: The Part No One Told Michael About -
Gluten-Free Diet: What Changed When I Finally Took It Seriously -
Pancreatic Disease: When “Incurable” Becomes Personal -
Morgellons Disease: When No One Agrees What You’re Going Through -
Fatigue: The Kind Rest Didn’t Fix -
Aarskog Syndrome: The Diagnosis That Left Us Searching for Answers -
Natural Hot Springs: Relief That Didn’t Come from a Prescription -
Progeria: My Son, My Greatest Teacher -
Idiopathic Pulmonary Fibrosis: Learning to Live Fully, Even When Breathing Isn’t Easy -
Polyarthritis: When Pain Moves, But Never Really Leaves -
Fabry Disease: A Story of Living with What Few Understand -
Myasthenia Gravis: When Your Strength Fades Without Warning (And What Helped Me Understand It) -
Video Game Therapy: Where Healing Didn’t Feel Like Therapy -
Cancerous Tumor: Jennifer’s Fight, One Decision at a Time -
Cerebral Palsy: A Life Lived Beyond Assumptions -
Plants: I Thought They Were Just Decor. I Was Wrong. -
Mitochondrial Disease: When Energy Isn’t Something You Can Rely On -
Lymphedema: What a Doctor Wants You to Understand (and What Actually Helps) -
Comfort: The One Thing I Didn’t Realize My Body Needed This Much -
Cramp Fasciculation Syndrome: What Marie Does When the Twitching Won’t Stop -
Parkinson’s Disease: From Heartache to Handbags: How Shopping Became My Way of Coping -
Fiber Neuropathy: Tracy on Living with Nerve Pain That Doesn’t Switch Off -
Hypersensitivity Pneumonitis: Jennifer’s Diagnosis Changed More Than Just Her Lungs -
Acromegaly: When COVID Disrupted a Body Already Dealing with Hormonal Imbalance -
Familial Hypercholesterolemia: Living with High Cholesterol That Shows No Warning Signs -
Thalassemia: Living Through Constant Low Hemoglobin and Repeated Transfusions -
Mental Health: How Pets Helped When My Mind Wouldn’t Slow Down -
Daily Health Management: The Kitchen Changes That Helped Me Stay Consistent -
POEMS Syndrome: When Nerve Issues and Symptoms Didn’t Seem to Connect at First -
Chronic Illness Treatment: Where Medical Cannabis Helped When Pain and Symptoms Persisted -
IBS: Living with Unpredictable Digestion and a Gut That Won’t Settle -
Spinal Cord Injury & Paralysis: Lakshmanan on What Life Looks Like Now -
Stiff Person Syndrome (SPS): When Laughter Became Part of My Survival