Post Views: 638 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. My research about my rare and chronic diseases began when I was left with a list of unanswered questions!! The purpose of gathering information and knowledge goes beyond textbooks. The idea …
Post Views: 679 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Isaacs’ Syndrome is not the kind of disease that one could manage alone. Isaacs’ is a neuromuscular health condition that stems from muscle hyperactivity. In this blog post, I will share …
Post Views: 674 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Like most of us, I didn’t pay attention to definitions and acronyms outside my work. In 2016, my life changed after getting diagnosed with a rare and a couple of chronic …
How Learning Medical Terms Made My Rare Journey Easy Read More »
Post Views: 686 This blog is another opportunity to feel grateful and thank you dear Universe: You continue to bless me with recovery and overall health. College days were fun, isn’t it? The transition phase is to suddenly feel like an adult and experience things like never before. It brought so much energy around, and …
Post Views: 419 This blog is another opportunity to feel grateful and thank you dear Universe: You continue to bless me with recovery and overall health. Patients struggling with any disease, whether rare or ordinary, have one thing in common – their desire to regain mental health and fitness. Right from our school days, we …
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Post Views: 408 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. CPK stands for Creatine Phosphokinase. It is an enzyme that is involved in the production of energy for muscle contractions. Typically, the levels of CPK in the blood are stable. The …
Post Views: 667 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. A story that my father recently recalled to my memory involves a penguin and an eagle. The penguin would watch the eagle soar overhead and wish that its flippers would allow …
Post Views: 850 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. This is my story of finding the light of Hope despite the darkness around. Suddenly, miraculous signs started to show up, Last night, each particle started moving within me, I realized …
5 Ways To Keep Hopeful While Living With A Rare Disease Read More »
Post Views: 282 This blog is another opportunity to feel grateful. Thank you, Universe, for continuing to bless me with recovery and health. There I was, in the 1st month of 2014, typically super busy with work, but this time completely out of focus. The reason was my intolerance to cold, especially in my feet …
Post Views: 583 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Imagine waking up daily to intense muscle cramps and spasm. Until today, the excruciating pain leaves me feeling helpless and wondering! What is this pain all about and why isn’t there …
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