Author name: Blog

Indian Vedic Wisdom: Reimagining My Chronic Illness Through Timeless Healing Traditions

Archith's / By / January 14,

Post Views: 63 First off, thank you, Universe. Every day I wake up, I feel blessed. Recovery isn’t linear, nor is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection, resilience, and extensive research. In 2016, my life took a dramatic turn. I was diagnosed with …

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Cardiomyopathy Journey: Our Family’s Story of Resilience and Hope

Patient Stories / By / October 28,

Post Views: 16 Will Tyson: A Heartfelt Advocate Will Tyson lives with a rare genetic heart disease called cardiomyopathy, just like his father, Mark. Their shared diagnosis changed everything, but instead of staying silent, Will chose to speak up. At 19, Will collapsed while playing basketball. That moment led to a life of medical care, …

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Microsoft’s Mega AI Investment Brings Hope to Rare Disease Patients

Archith's / By / January 14,

Post Views: 228 As 2025 draws to a close, one story rises above the noise, reshaping both India’s health and business landscape. Microsoft’s bold investment in Artificial Intelligence (AI) isn’t just fueling economic growth; it’s rewriting what care can feel like. From faster diagnoses to district clinics suddenly empowered with specialist knowledge. AI is transforming …

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5 Proven Ways a Problem‑Solver Mindset Boosts Rare Disease Resilience

Archith's / By / January 14,

Post Views: 333 First off, thank you, Universe. Every day, I wake up feeling blessed. Recovery isn’t linear, nor is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection and resilience.  The First Whispers It began with whispers. Not voices, but signals that were strange, insistent …

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Allergies Uncovered: Triggers, Rare Conditions & Breakthrough Treatments

Expert's View / By / December 14,

Post Views: 125 Archith Allergies are often brushed off as “just sneezing” or a seasonal nuisance. But as Dr. Dayanashre K reminds us, they deserve a closer look. In India, where our environment and food habits are so diverse, allergies can show up in unexpected ways from everyday triggers like dust and pollen to less …

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Hao-Fountain Syndrome (USP7): Patient Stories and Research

Expert's View / By / December 14,

Post Views: 307 Archith James Smith is the co‑founder of the Foundation for Hao‑Fountain Syndrome, a global initiative born from his family’s own rare disease journey. When his daughter was diagnosed with Hao‑Fountain Syndrome, James transformed years of uncertainty into a mission: to connect families, accelerate research, and advocate for better access to care. Because …

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4 Inspiring Ways to Cope with Huntington’s Disease: Michael’s Story

Patient Stories / By / December 14,

Post Views: 175 Archith At our platform, we believe the most powerful insights come not just from research and statistics, but from lived experience. Today, we are honored to share the story of Michael Turner, a 42‑year‑old father of two from Austin, Texas, who is living with Huntington’s disease. Michael’s journey is one of resilience, …

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Spiritual Insight Through My Illness: Pain, and the Cosmic Joke Explained

Archith's / By / December 14,

Post Views: 292 Gratitude is my morning mantra. Every heartbeat and step forward in recovery is a blessing I don’t take for granted. So, dear Universe, thank you. You continue to bless me with health and the strength to persevere. Introduction: When My Life Became a Punchline Back in 2016, my life took a drastic …

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Indian Renal Diet Plan: Nourish Your Kidneys with Authentic Food Wisdom

Expert's View / By / November 6,

Post Views: 320 Archith This insightful blog was written exclusively for Ordinarily Rare by Dr. Jyoti Singh, a seasoned nutritionist with deep expertise in renal diet planning. With years of experience guiding patients through the complexities of kidney care, Dr. Singh brings a rare blend of clinical precision and cultural sensitivity to her work. Her …

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Resilient Leadership: 7 Great Lessons Chronic Illness Taught Me

Archith's / By / October 29,

Post Views: 944 First off, thank you, Universe. Every day I wake up, I feel blessed. Recovery isn’t linear, nor is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection, resilience, and extensive research. In 2016, my life split into two chapters. One day, I was …

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