Post Views: 3 Archith Allergies are often brushed off as “just sneezing” or a seasonal nuisance. But as Dr. Dayanashre K reminds us, they deserve a closer look. In India, where our environment and food habits are so diverse, allergies can show up in unexpected ways from everyday triggers like dust and pollen to less …
Allergies Uncovered: Triggers, Rare Conditions & Breakthrough Treatments Read More »
Post Views: 17 Archith James Smith is the co‑founder of the Foundation for Hao‑Fountain Syndrome, a global initiative born from his family’s own rare disease journey. When his daughter was diagnosed with Hao‑Fountain Syndrome, James transformed years of uncertainty into a mission: to connect families, accelerate research, and advocate for better access to care. Because …
Hao-Fountain Syndrome (USP7): Patient Stories and Research Read More »
Post Views: 28 First off, thank you, Universe. Every day I wake up, I feel blessed. Recovery isn’t linear, nor is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection, resilience, and extensive research. In 2016, my life took a dramatic turn. I was diagnosed with …
Indian Vedic Wisdom: Reimagining My Chronic Illness Through Timeless Healing Traditions Read More »
Post Views: 14 Archith At our platform, we believe the most powerful insights come not just from research and statistics, but from lived experience. Today, we are honored to share the story of Michael Turner, a 42‑year‑old father of two from Austin, Texas, who is living with Huntington’s disease. Michael’s journey is one of resilience, …
4 Inspiring Ways to Cope with Huntington’s Disease: Michael’s Story Read More »
Post Views: 36 Gratitude is my morning mantra. Every heartbeat and step forward in recovery is a blessing I don’t take for granted. So, dear Universe, thank you. You continue to bless me with health and the strength to persevere. Introduction: When My Life Became a Punchline Back in 2016, my life took a drastic …
Spiritual Insight Through My Illness: Pain, and the Cosmic Joke Explained Read More »
Post Views: 297 Archith This insightful blog was written exclusively for Ordinarily Rare by Dr. Jyoti Singh, a seasoned nutritionist with deep expertise in renal diet planning. With years of experience guiding patients through the complexities of kidney care, Dr. Singh brings a rare blend of clinical precision and cultural sensitivity to her work. Her …
Indian Renal Diet Plan: Nourish Your Kidneys with Authentic Food Wisdom Read More »
Post Views: 913 First off, thank you, Universe. Every day I wake up, I feel blessed. Recovery isn’t linear, nor is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection, resilience, and extensive research. In 2016, my life split into two chapters. One day, I was …
Resilient Leadership: 7 Great Lessons Chronic Illness Taught Me Read More »
Post Views: 182 Archith Garry isn’t just a writer, he’s a survivor and a guide. Living with Hashimoto’s Thyroiditis, a chronic autoimmune condition, he knows firsthand the daily challenges of managing health while trying to live fully. Through his blog, Garry shares how adopting a gluten-free lifestyle transformed his journey. What once felt like survival …
7 Ways How A Gluten Free Diet Helped My Chronic Disease Read More »
Post Views: 633 Archith At Ordinarily Rare, we feature voices that bring clarity and hope to those living with uncommon health journeys. One such voice is Guru Prakash Iyer, an Iyengar Yoga teacher based in Pune, Maharashtra. It is the city where B.K.S. Iyengar built his global legacy. With years of experience in Iyengar Yoga …
4 Ways Iyengar Yoga Works for Chronic and Rare Diseases Read More »
Post Views: 798 Value is often hidden where the world refuses to look. In markets, it’s the neglected sectors. In medicine, it’s the rare diseases that affect only a handful of people. In a small clinic in India, a young man waits years for a diagnosis of a disease so rare that even specialists struggle …
The Hidden Alpha: How Rare Diseases Drive Medical Breakthroughs and Global Investments Read More »
You cannot copy content of this page