Author name: Blog

Initial Steps after a rare diagnosis

8 Must-Do Immediate Steps After Receiving a Rare or Chronic Illness Diagnosis

Archith's / By / October 1,

Post Views: 979 I wake, I breathe, I thank the Universe: You’ve walked beside me through agony, uncertainty, and the grace of healing. When people ask me, “What was the first thing you did after being diagnosed with multiple chronic illnesses?” They aren’t just asking about medical steps. They’re asking about survival. About resilience. About …

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Natural Hot Springs: 5 Proven Healing Benefits for Rare Diseases

Patient Stories / By / October 5,

Post Views: 432 Archith’s Note: Living with a rare neurological condition called Kleine-Levin Syndrome (KLS) can often feel like walking an uncharted path where answers are scarce, treatments uncertain, and hope must be carved out of resilience. Today, I share the journey of a patient from India, Tavish, who has chosen to navigate this path …

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Living with Progeria: My Son, My Teacher and Our Rare Disease Journey

Patient Stories / By / October 4,

Post Views: 94 When Jasper was born, I thought my life had found its brightest light. His tiny fingers curled around mine, and I whispered promises of protection, love, and endless tomorrows. Like every mother, I dreamed of his first steps, his first day at school, his teenage years, and the man he would one …

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Idiopathic Pulmonary Fibrosis: 5 Ways to Live Joyfully with It

Patient Stories / By / October 4,

Post Views: 11 A Breath of Perspective When we think of incurable lung diseases, the first images that come to mind are oxygen masks, hospital corridors, and endless coughing. But… What if I told you that some patient journeys are filled with resilience and even quirky life hacks? This is the story of Chintan, a …

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Say no to Ultra Processed Foods to improve Rare and Chronic Diseases

Burgers That Never Age: A Strange Notification

Archith's / By / October 1,

Post Views: 1,597 This blog is more than just a reflection—it’s an expression of deep gratitude. Thank you, Universe, for guiding me through recovery and continuing to bless me with health and resilience. It was supposed to be one of those carefree moments: unapologetically savoring a greasy, delicious burger with extra toppings. And then, just …

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Polyarthritis: Symptoms, Causes, and Effective Treatments for Long-Term Relief

Patient Stories / By / October 4,

Post Views: 523 Q-1) Could you briefly describe your story? A-1) Hey I am Ramuna. I was diagnosed with ‘’Polyarthritis” when I was half a year old. My right ankle doesn’t bend over, and my leg is small and thin. In my country Lithuania I was second with polyarthritis. Before I was diagnosed with polyarthritis …

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Science of Happiness

When the Body Whispers, Listen: 9 Ways How I Understood the Science of Happiness

Archith's / By / August 12,

Post Views: 415 Some days, I write just to say thank you, to the Universe, to my body, to the journey that’s made me stronger than I ever imagined I could be. This is one of those days. The Quiet Chemistry of Joy Dopamine is the happy or feel-good hormone. It is a particular class …

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“But You Don’t Look Sick”: My Life with Rare and Invisible Illnesses

Archith's / By / September 7,

Post Views: 44 First off, thank you, Universe. Every day I wake up feeling blessed. Recovery isn’t linear, and neither is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection, resilience, and plenty of research. Living with the Unseen: The Fine Line Between Health and Illness …

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Fabry Disease India Story: Inspiring Journey of Courage and Hope

Patient Stories / By / October 4,

Post Views: 508 When we talk about rare diseases in India, Fabry Disease often remains hidden in the shadows. Yet, behind the statistics are real people, patients and families navigating pain. This is the story of Dr Divyansh. He is a young doctor whose journey with Fabry Disease shows us why awareness, early diagnosis, and …

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