Post Views: 268 Archith Louis is as brave as his name suggests, facing every challenge with remarkable courage. He lives with Morvan syndrome, a rare condition that tests both body and mind, yet he continues to turn his struggles into strength. In this blog, Louis discusses his symptoms and the lessons he has learned along …
13 Extraordinary Ways to Combat Fatigue and Gain Energy Read More »
Post Views: 869 First off—thank you, Universe. Every day I wake up feeling blessed. Recovery isn’t linear, and neither is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection, resilience, and plenty of research. Living with multiple chronic illnesses is like juggling flaming swords while walking …
How I Travel with Chronic Illness: My Ultimate Survival Guide Read More »
Post Views: 1,009 Some days, I write just to say thank you, to the Universe, to my body, to the journey that’s made me stronger than I ever imagined I could be. This is one of those days. Managing multiple chronic illnesses isn’t just about taking medicine; it’s a daily act of adaptation. For me, …
Thriving with A Rare Disease: The Role of Technology in Daily Life Read More »
Post Views: 203 I’m Liam, father to a bright, funny, and determined girl named Orla. She’s 14 now, and if you met her, you’d probably notice her laughter before anything else. It fills a room, and it’s the kind of laughter that makes you forget your worries for a moment. But behind that laughter is …
Aarskog Syndrome: Signs, Supporting Families, and Navigating Rare Diagnosis Read More »
Post Views: 1,353 There are moments when words can barely capture the waves of gratitude, and this blog is one of them. Thank you, dear Universe, for continuing to bless me with recovery and good health. Every day feels like a new opportunity to honor this second chance with a purpose. If you’ve ever been …
10 Ayurvedic Principles That Enhanced My Rare Treatment Read More »
Post Views: 1,631 This blog is more than just a reflection; it’s an expression of deep gratitude. Thank you, Universe, for guiding me through recovery and continuing to bless me with health and resilience. It was supposed to be one of those carefree moments: unapologetically savoring a greasy, delicious burger with extra toppings. And then, …
Post Views: 466 Archith Living with a rare neurological condition called Kleine-Levin Syndrome (KLS) can often feel like walking an uncharted path where answers are scarce, treatments uncertain, and hope must be carved out of resilience. Today, I share the journey of a patient from India, Tavish, who has chosen to navigate this path uniquely: …
Natural Hot Springs: 5 Proven Healing Benefits for Rare Diseases Read More »
Post Views: 441 Some days, I write just to say thank you, to the Universe, to my body, to the journey that’s made me stronger than I ever imagined I could be. This is one of those days. The Quiet Chemistry of Joy Dopamine is the happy or feel-good hormone. It is a particular class …
When the Body Whispers, Listen: 9 Ways How I Understood the Science of Happiness Read More »
Post Views: 126 When Jasper was born, I thought my life had found its brightest light. His tiny fingers curled around mine, and I whispered promises of protection, love, and endless tomorrows. Like every mother, I dreamed of his first steps, his first day at school, his teenage years, and the man he would one …
Living with Progeria: My Son, My Teacher and Our Rare Disease Journey Read More »
Post Views: 51 A Breath of Perspective When we think of incurable lung diseases, the first images that come to mind are oxygen masks, hospital corridors, and endless coughing. But… What if I told you that some patient journeys are filled with resilience and even quirky life hacks? This is the story of Chintan, a …
Idiopathic Pulmonary Fibrosis: 5 Ways to Live Joyfully with It Read More »
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