Post Views: 772 Q-1) Could you briefly describe your story? A-1) Hey I am Ramuna. I was diagnosed with ‘’Polyarthritis” when I was half a year old. My right ankle doesn’t bend over, and my leg is small and thin. In my country Lithuania I was second with polyarthritis. Before I was diagnosed with polyarthritis […]
Polyarthritis: When Pain Moves, But Never Really Leaves Read More »
Post Views: 695 First off, thank you, Universe. Every day I wake up feeling blessed. Recovery isn’t linear, and neither is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection, resilience, and plenty of research. Living with the Unseen: The Fine Line Between Health and Illness
What You Can’t See: Living with an Invisible Illness Read More »
Post Views: 655 When we talk about rare diseases in India, Fabry Disease often remains hidden in the shadows. Yet, behind the statistics are real people, patients and families navigating pain. This is the story of Dr Divyansh. He is a young doctor whose journey with Fabry Disease shows us why awareness, early diagnosis, and
Fabry Disease: A Story of Living with What Few Understand Read More »
Post Views: 575 Sometimes the things we can’t change end up changing us. I sit here today with a heart full of gratitude for the strength to write this, for the breath that flows freely, and for the resilience that carried me through the chaos. Life threw curveballs I never saw coming, and yet, here
I Thought I Knew Success: Until Rare Disease Rewrote the Rules Read More »
Post Views: 217 Archith’s Note: I spoke to Oliver and decided to share his story. He showed great strength and honesty while speaking about his journey with Myasthenia Gravis. During our conversation, I was deeply moved by his resilience. The way he continues to live with dignity despite challenges is commendable. His words reminded me
Post Views: 697 Act One: Isaacs’ Syndrome Enters Stage Let’s set the scene: It’s 2014. I’m living a relatively normal life, probably complaining about slow Wi-Fi or the lack of good snacks in the pantry. Then, out of nowhere, my muscles start twitching like they’ve just discovered caffeine. I wasn’t dancing. I wasn’t exercising. I
Isaacs’ Syndrome: Surviving the Comedy, Chaos, and Chronic Unknowns Read More »
Post Views: 750 Archith This blogs comes from one of the most gaming-active countries in the world, Philippines. Stats say that nearly all internet users (about 75–86%) play video games, mostly on mobile devices. For most of us, video games are a pastime, a way to unwind, compete, or escape into another world. But for
Video Game Therapy: Where Healing Didn’t Feel Like Therapy Read More »
Post Views: 549 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Research reports show that on a full moon, people sleep less. I was even otherwise hitting the hay very limited post my diagnosis. I think a lot changed for me. In 2016,
From Exhaustion to Health: Sleep Hygiene Wins Read More »
Post Views: 1,290 Q-1) Describe your story? A-1) I was unaware that I had a Cancerous Tumor. Let me tell you that a tumor is a solid mass of tissue. It forms when abnormal cells group together. A tumor is capable of affecting bones, tissue, glands, skin, and organs. Many tumors are not cancer (but
Cancerous Tumor: Jennifer’s Fight, One Decision at a Time Read More »
Post Views: 709 Gratitude. If I could choose one word to describe my outlook today, it’s that. Despite the unraveling diagnosis, the unpredictable symptoms, and the years of physical struggle, I’m still here, breathing, healing, and learning. And for that, I thank the Universe with all my heart. Every fragrance has a story. Mine came
From Scent to Sensitivity: Why My Body Stopped Tolerating It Read More »
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