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Post Views: 876 A personal journey through chronic illness and the tools that helped me cope Living with chronic illness is like being thrown into a storm without a forecast. You never quite know when the winds will pick up, when the skies will darken, or when your body will betray you again. For me, […]

Post Views: 481 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Post getting diagnosed with rare and chronic diseases I became inquisitive about what my blood group A positive (+) could say about healing. I was diagnosed with a rare disease called

Post Views: 274 Blame is such a heavy word; sharp, quick to judge, and often misplaced. When the world is shattered by a diagnosis of a chronic illness, it’s natural to look for a reason or a culprit. Could blame in such cases act as a protective emotion rather than a destructive one? And more

Post Views: 467 Sometimes, healing begins not with a pill or a diagnosis, but with a simple moment of gratitude. Every breath I take, every morning I wake up feeling just a little stronger, is a quiet thanks to the Universe. Living with a rare and chronic illness has taught me that recovery isn’t just

Post Views: 1,667 Some stories don’t start with fairy tale endings. They begin quietly, with a diagnosis that flips your world upside down. For me, that moment arrived with a single sentence: “It’s a rare disease with a couple of chronic conditions.” It was in a routine moment that my life quietly changed. I was

Post Views: 2,096 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. The marks felt like mementos of imperfection on my legs that I didn’t deserve. Likewise, my rare neurological disease, even days with eczema can feel quite unpredictable. At first, I thought the

Post Views: 1,214 This blog is another opportunity to feel grateful. Thank you, Universe, for continuing to bless me with recovery and health.  Anyone who’s ever suffered from Isaacs’ Syndrome knows that the rare disease makes one so vulnerable in every little aspect. I contracted a chronic frozen shoulder condition and felt excruciating pain. In

Post Views: 678 Hopeful Science: Could CRISPR Help Me Heal? First off—thank you, Universe. Every day I wake up, I feel blessed. Recovery is not linear, and neither is health, but both are worth fighting for. If you’re reading this blog, welcome to my world of reflection, resilience, and a whole lot of research. This

Post Views: 765 Life dances to its rhythm, tossing us unexpected challenges when we least expect them. In my case, the year 2016 marked a profound turning point. I was diagnosed with a rare neuromuscular condition known as Isaacs’ Syndrome. And that was just the beginning—Lyme disease, Glaucoma, Membranous Glomerulonephritis, Irritable Bowel Syndrome (IBS), Diabetes,