Post Views: 924 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. ‘Medicine for sure is a team sport’, and that’s exactly how I perceived it while dealing with my rare disease. This blog talks about how building a dream team of doctors …
Post Views: 461 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. ”It’s time to reduce your medicines following a systematic tapering plan (STP)”. My Neurologist commented after visiting my health status as I looked at him in amusement. Now what’s that? I …
Post Views: 917 This blog is another opportunity to feel grateful. Thank you, Universe, for continuing to bless me with recovery and health. Everyone dreams of finding a pot of gold at the end of the rainbow, especially when life throws a curveball at us. While neither of those is realistic, what is possible is …
5 Dynamic Ways Financial Planning Helped Me Afford Rare Medical Treatment Read More »
Post Views: 830 This blog is another opportunity to feel grateful. Thank you, dear Universe, for blessing me with recovery and health. It’s said that no Recovery Method could replace or cover up for poor diet and lack of rest. Rest can look different for every individual. It could be active or passive in nature. …
What Is the Importance of Rest to Cope From Chronic Diseases Read More »
Post Views: 737 This blog is another opportunity to feel grateful and thank you, dear Universe: You continue to bless me with recovery and overall health. Introduction: From Diagnosis to a New Path In 2016, my world changed dramatically when I was diagnosed with Isaacs’ Syndrome. It is a rare, puzzling, and often unseen neurological …
8 Ways How Patient Support Groups Were A Boon to My Health Crisis Read More »
Post Views: 637 This blog is another opportunity to feel grateful. I thank you dear Universe to continue blessing me with recovery and health. What do you do when life knocks you down? Do you give easy or stand up and start to walk again? A rare disease patient may face challenges that are quite …
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Post Views: 793 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. My research about my rare and chronic diseases began when I was left with a list of unanswered questions!! The purpose of gathering information and knowledge goes beyond textbooks. The idea …
Post Views: 884 Living with a rare disease like Isaacs’ Syndrome is not just a medical challenge. Trust me, it’s a deeply personal journey that reshapes your identity, your relationships, and your outlook on life. As someone who has walked this path, I feel compelled to share my story. It’s not just to raise awareness …
5 Essential Steps for Families Supporting Loved Ones with Rare Diseases Read More »
Post Views: 856 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Like most of us, I didn’t pay attention to definitions and acronyms outside my work. In 2016, my life changed after getting diagnosed with a rare and a couple of chronic …
How Learning Medical Terms Made My Rare Journey Easy Read More »
Post Views: 872 I take a quiet moment to look inward, acknowledge the journey, and whisper a soft “thank you” to the Universe. This blog isn’t just a story; it’s a reflection on recovery and rediscovering joy through the toughest of trials. Life never promised to be easy, but my spirit remains deeply thankful for …
How Spoon Theory Helped Me Monitor and Optimize Energy Levels Read More »
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