Post Views: 577 This blog is another opportunity to feel grateful. I thank you dear Universe to continue blessing me with recovery and health. What do you do when life knocks you down? Do you give easy or stand up and start to walk again? A rare disease patient may face challenges that are quite …
6 Strategies to Cope with Social Health During Difficult Times Read More »
Post Views: 703 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. My research about my rare and chronic diseases began when I was left with a list of unanswered questions!! The purpose of gathering information and knowledge goes beyond textbooks. The idea …
Post Views: 774 Living with a rare disease like Isaacs’ Syndrome is not just a medical challenge. Trust me, it’s a deeply personal journey that reshapes your identity, your relationships, and your outlook on life. As someone who has walked this path, I feel compelled to share my story. It’s not just to raise awareness …
5 Essential Steps for Families Supporting Loved Ones with Rare Diseases Read More »
Post Views: 767 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Like most of us, I didn’t pay attention to definitions and acronyms outside my work. In 2016, my life changed after getting diagnosed with a rare and a couple of chronic …
How Learning Medical Terms Made My Rare Journey Easy Read More »
Post Views: 791 I take a quiet moment to look inward, acknowledge the journey, and whisper a soft “thank you” to the Universe. This blog isn’t just a story; it’s a reflection on recovery and rediscovering joy through the toughest of trials. Life never promised to be easy, but my spirit remains deeply thankful for …
How Spoon Theory Helped Me Monitor and Optimize Energy Levels Read More »
Post Views: 501 This blog is another opportunity to feel grateful and thank you dear Universe: You continue to bless me with recovery and overall health. Patients struggling with any disease, whether rare or ordinary, have one thing in common – their desire to regain mental health and fitness. Right from our school days, we …
How Important Is Mental Resilience During Tough Times Read More »
Post Views: 2,502 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. CPK stands for Creatine Phosphokinase. It is an enzyme that is involved in the production of energy for muscle contractions. Typically, the levels of CPK in the blood are stable. The …
Post Views: 1,782 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. A story that my father recently recalled to my memory involves a penguin and an eagle. The penguin would watch the eagle soar overhead and wish that its flippers would allow …
The Power of Acceptance: A Heartfelt Story of Healing and Hope Read More »
Post Views: 947 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. This is my story of finding the light of Hope despite the darkness around. Suddenly, miraculous signs started to show up, Last night, each particle started moving within me, I realized …
5 Ways To Keep Hopeful While Living With A Rare Disease Read More »
Post Views: 346 This blog is another opportunity to feel grateful. Thank you, Universe, for continuing to bless me with recovery and health. There I was, in the 1st month of 2014, typically super busy with work, but this time completely out of focus. The reason was my intolerance to cold, especially in my feet …
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