Post Views: 563 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. It was traumatic to discover, that what was once available at free will needed vigilance. I was asked to measure and consume water as per my prescription. Out of the blue, […]
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Post Views: 1,006 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. ‘Medicine for sure is a team sport’, and that’s exactly how I perceived it while dealing with my rare disease. This blog talks about how building a dream team of doctors
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Post Views: 522 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. ”It’s time to reduce your medicines following a systematic tapering plan (STP)”. My Neurologist commented after visiting my health status as I looked at him in amusement. Now what’s that? I
Medication Management: I Learned the Hard Way This Isn’t Optional Read More »
Post Views: 1,007 This blog is another opportunity to feel grateful. Thank you, Universe, for continuing to bless me with recovery and health. Everyone dreams of finding a pot of gold at the end of the rainbow, especially when life throws a curveball at us. While neither of those is realistic, what is possible is
5 Dynamic Ways Financial Planning Helped Me Afford Rare Medical Treatment Read More »
Post Views: 894 This blog is another opportunity to feel grateful. Thank you, dear Universe, for blessing me with recovery and health. It’s said that no Recovery Method could replace or cover up for poor diet and lack of rest. Rest can look different for every individual. It could be active or passive in nature.
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Post Views: 810 This blog is another opportunity to feel grateful and thank you, dear Universe: You continue to bless me with recovery and overall health. Introduction: From Diagnosis to a New Path In 2016, my world changed dramatically when I was diagnosed with Isaacs’ Syndrome. It is a rare, puzzling, and often unseen neurological
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Post Views: 693 This blog is another opportunity to feel grateful. I thank you dear Universe to continue blessing me with recovery and health. What do you do when life knocks you down? Do you give easy or stand up and start to walk again? A rare disease patient may face challenges that are quite
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Post Views: 874 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. My research about my rare and chronic diseases began when I was left with a list of unanswered questions!! The purpose of gathering information and knowledge goes beyond textbooks. The idea
Why I Couldn’t Rely Only on Doctors: and Started Researching Myself Read More »
Post Views: 955 Living with a rare disease like Isaacs’ Syndrome is not just a medical challenge. Trust me, it’s a deeply personal journey that reshapes your identity, your relationships, and your outlook on life. As someone who has walked this path, I feel compelled to share my story. It’s not just to raise awareness
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Post Views: 996 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Like most of us, I didn’t pay attention to definitions and acronyms outside my work. In 2016, my life changed after getting diagnosed with a rare and a couple of chronic
Understanding Medical Terms Gave Me Back Control Read More »
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