Patient Blog

Patient Blog

Cavernous Malformations: The Quiet Bleed That Changed it All
Ordinarily Rare • May 12, 2026

Cavernous Malformations: The Quiet Bleed That Changed it All

Cardiomyopathy: The Day Everything Changed for the Family
Ordinarily Rare • January 8, 2026

Cardiomyopathy: The Day Everything Changed for the Family

Living with ALS: Inspiring Patient Story of Hope, Ayurveda, and Technology
Ordinarily Rare • December 28, 2025

Living with ALS: Inspiring Patient Story of Hope, Ayurveda, and Technology

Huntington’s Disease: The Part No One Told Michael About
Ordinarily Rare • November 18, 2025

Huntington’s Disease: The Part No One Told Michael About

Gluten-Free Diet: What Changed When I Finally Took It Seriously
Ordinarily Rare • October 26, 2025

Gluten-Free Diet: What Changed When I Finally Took It Seriously

Pancreatic Disease: When “Incurable” Becomes Personal
Ordinarily Rare • October 13, 2025

Pancreatic Disease: When “Incurable” Becomes Personal

Morgellons Disease: When No One Agrees What You’re Going Through
Ordinarily Rare • October 1, 2025

Morgellons Disease: When No One Agrees What You’re Going Through

Fatigue: The Kind Rest Didn’t Fix
Ordinarily Rare • September 14, 2025

Fatigue: The Kind Rest Didn’t Fix

Aarskog Syndrome: The Diagnosis That Left Us Searching for Answers
Ordinarily Rare • August 10, 2025

Aarskog Syndrome: The Diagnosis That Left Us Searching for Answers

Natural Hot Springs: Relief That Didn’t Come from a Prescription
Ordinarily Rare • July 8, 2025

Natural Hot Springs: Relief That Didn’t Come from a Prescription

Progeria: My Son, My Greatest Teacher
Ordinarily Rare • June 23, 2025

Progeria: My Son, My Greatest Teacher

Idiopathic Pulmonary Fibrosis: Learning to Live Fully, Even When Breathing Isn’t Easy
Ordinarily Rare • June 20, 2025

Idiopathic Pulmonary Fibrosis: Learning to Live Fully, Even When Breathing Isn’t Easy

Polyarthritis: When Pain Moves, But Never Really Leaves
Ordinarily Rare • June 4, 2025

Polyarthritis: When Pain Moves, But Never Really Leaves

Fabry Disease: A Story of Living with What Few Understand
Ordinarily Rare • May 20, 2025

Fabry Disease: A Story of Living with What Few Understand

Myasthenia Gravis: When Your Strength Fades Without Warning (And What Helped Me Understand It)
Ordinarily Rare • May 2, 2025

Myasthenia Gravis: When Your Strength Fades Without Warning (And What Helped Me Understand It)

Video Game Therapy: Where Healing Didn’t Feel Like Therapy
Ordinarily Rare • April 22, 2025

Video Game Therapy: Where Healing Didn’t Feel Like Therapy

Cancerous Tumor: Jennifer’s Fight, One Decision at a Time
Ordinarily Rare • April 10, 2025

Cancerous Tumor: Jennifer’s Fight, One Decision at a Time

Cerebral Palsy: A Life Lived Beyond Assumptions
Ordinarily Rare • March 11, 2025

Cerebral Palsy: A Life Lived Beyond Assumptions

Plants: I Thought They Were Just Decor. I Was Wrong.
Ordinarily Rare • February 22, 2025

Plants: I Thought They Were Just Decor. I Was Wrong.

Mitochondrial Disease: When Energy Isn’t Something You Can Rely On
Ordinarily Rare • February 12, 2025

Mitochondrial Disease: When Energy Isn’t Something You Can Rely On

Lymphedema: What a Doctor Wants You to Understand (and What Actually Helps)
Ordinarily Rare • January 7, 2025

Lymphedema: What a Doctor Wants You to Understand (and What Actually Helps)

Comfort: The One Thing I Didn’t Realize My Body Needed This Much
Ordinarily Rare • October 2, 2024

Comfort: The One Thing I Didn’t Realize My Body Needed This Much

Cramp Fasciculation Syndrome: What Marie Does When the Twitching Won’t Stop
Ordinarily Rare • June 12, 2024

Cramp Fasciculation Syndrome: What Marie Does When the Twitching Won’t Stop

Parkinson’s Disease: From Heartache to Handbags: How Shopping Became My Way of Coping
Ordinarily Rare • March 14, 2024

Parkinson’s Disease: From Heartache to Handbags: How Shopping Became My Way of Coping

Fiber Neuropathy: Tracy on Living with Nerve Pain That Doesn’t Switch Off
Ordinarily Rare • February 22, 2024

Fiber Neuropathy: Tracy on Living with Nerve Pain That Doesn’t Switch Off

Hypersensitivity Pneumonitis: Jennifer’s Diagnosis Changed More Than Just Her Lungs
Ordinarily Rare • January 12, 2024

Hypersensitivity Pneumonitis: Jennifer’s Diagnosis Changed More Than Just Her Lungs

Acromegaly: When COVID Disrupted a Body Already Dealing with Hormonal Imbalance
Ordinarily Rare • January 7, 2024

Acromegaly: When COVID Disrupted a Body Already Dealing with Hormonal Imbalance

Familial Hypercholesterolemia: Living with High Cholesterol That Shows No Warning Signs
Ordinarily Rare • December 22, 2023

Familial Hypercholesterolemia: Living with High Cholesterol That Shows No Warning Signs

Thalassemia: Living Through Constant Low Hemoglobin and Repeated Transfusions
Ordinarily Rare • November 12, 2023

Thalassemia: Living Through Constant Low Hemoglobin and Repeated Transfusions

Mental Health: How Pets Helped When My Mind Wouldn’t Slow Down
Ordinarily Rare • September 12, 2023

Mental Health: How Pets Helped When My Mind Wouldn’t Slow Down

Categories

5
A–E (0) F–J (0) K–O (0) P–T (0) U–Z (0)

Recent Posts

May 12, 2026

Cavernous Malformations: The Quiet Bleed That Changed it All

January 8, 2026

Cardiomyopathy: The Day Everything Changed for the Family

December 28, 2025

Living with ALS: Inspiring Patient Story of Hope, Ayurveda, and Technology

November 18, 2025

Huntington’s Disease: The Part No One Told Michael About

Gluten Free
October 26, 2025

Gluten-Free Diet: What Changed When I Finally Took It Seriously

October 13, 2025

Pancreatic Disease: When “Incurable” Becomes Personal