Post Views: 843 This blog is another opportunity to feel grateful. Thank you, Universe, for continuing to bless me with recovery and health. Everyone dreams of finding a pot of gold at the end of the rainbow, especially when life throws a curveball at us. While neither of those is realistic, what is possible is …
5 Dynamic Ways Financial Planning Helped Me Afford Rare Medical Treatment Read More »
Post Views: 644 My name is Megha, though I never could relate to it. It could have been anything. 🙂 I was diagnosed with Thalassemia a few months over two years, I don’t recall what I experienced at that time. The oldest memories of resistance, are of clutching the bedroom door handle tight, wearing a pink printed …
Post Views: 796 This blog is another opportunity to feel grateful. Thank you, dear Universe, for blessing me with recovery and health. It’s said that no Recovery Method could replace or cover up for poor diet and lack of rest. Rest can look different for every individual. It could be active or passive in nature. …
What Is the Importance of Rest to Cope From Chronic Diseases Read More »
Post Views: 546 Archith’s Note It is a privilege to share this contribution from Dr. Paul Lam, a retired family physician from Sydney, Australia, and the founder of the Tai Chi for Health Institute. With over 40 years of experience in both Western medicine and Traditional Chinese Medicine, Dr. Lam has dedicated his life to …
Tai Chi for Rare & Chronic Conditions: Ancient Chinese Healing Art Read More »
Post Views: 688 This blog is another opportunity to feel grateful and thank you, dear Universe: You continue to bless me with recovery and overall health. Introduction: From Diagnosis to a New Path In 2016, my world changed dramatically when I was diagnosed with Isaacs’ Syndrome. It is a rare, puzzling, and often unseen neurological …
8 Ways How Patient Support Groups Were A Boon to My Health Crisis Read More »
Post Views: 602 This blog is another opportunity to feel grateful. I thank you dear Universe to continue blessing me with recovery and health. What do you do when life knocks you down? Do you give easy or stand up and start to walk again? A rare disease patient may face challenges that are quite …
6 Strategies to Cope with Social Health During Difficult Times Read More »
Post Views: 730 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. My research about my rare and chronic diseases began when I was left with a list of unanswered questions!! The purpose of gathering information and knowledge goes beyond textbooks. The idea …
Post Views: 816 Living with a rare disease like Isaacs’ Syndrome is not just a medical challenge. Trust me, it’s a deeply personal journey that reshapes your identity, your relationships, and your outlook on life. As someone who has walked this path, I feel compelled to share my story. It’s not just to raise awareness …
5 Essential Steps for Families Supporting Loved Ones with Rare Diseases Read More »
Post Views: 813 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Like most of us, I didn’t pay attention to definitions and acronyms outside my work. In 2016, my life changed after getting diagnosed with a rare and a couple of chronic …
How Learning Medical Terms Made My Rare Journey Easy Read More »
Post Views: 510 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. There is a lot, this sphere offers that words in vocabulary can actually express. Initially, I was confused thinking that Spiritual Care was similar to a Religion however I ended up …
How To Make More of Spiritual Care Therapy by Doing Least Read More »
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