Post Views: 646 They say health is wealth, but I never truly grasped its depth until the day my body began sending signals I couldn’t ignore. What started as a harmless twitch soon escalated into something far more persistent and life-altering. Today, I write this not just to share my journey with Isaacs’ Syndrome, but …
Living with Fasciculations: My Key Lessons from Muscle Twitches Read More »
Post Views: 459 This blog is another opportunity to feel grateful and thank you, dear Universe: You continue to bless me with recovery and health. He says I’ll be fine At times, life bends us way too much between two breaths, Health is an honour, and not everyone is respected. Wonder why our relationship turned …
Navigating Life’s Storms with Grace, Faith & Healing Read More »
Post Views: 486 Rachit: – Rare & Chronic ailments are not the kind of diseases that can be managed alone. As I reflect on the years since my diagnosis, I wish to acknowledge my family’s strength and spirit that proved vital to my recovery. A caregiver’s role is never easy. Q-1) Could you briefly describe …
Post Views: 579 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. This blog post aims to ensure that one does not feel alone in this rare disease journey. From getting the diagnosis to accepting it is just one side of the coin. …
Did You Know Body Weight Can Lie in a Rare Disease? Read More »
Post Views: 463 There were moments in life when I felt like I possessed superpowers that could change circumstances! Continuing from my last blog, why did I start living like someone else? – wherein I spoke about the ways my life changed in 2016 after I was diagnosed with a rare disease, Isaacs’ Syndrome (also …
A Never Changing You, Will Eventually Destroy You! Read More »
Post Views: 488 Q-1) Could you briefly describe your story? A-1) I started noticing vibrations, under my skin, similar to a cell phone vibration, in 2011. As time went on, I started experiencing more intense cramping in my extremities. When I went to the doctor, he suggested that it was from being diabetic and my …
Ways Marie is Dealing With Cramp Fasciculation Syndrome Read More »
Post Views: 1,149 This blog is one such celebration, a moment of gratitude for the Universe. It has continuously blessed me with resilience, recovery, and the gift of health. Life has an uncanny way of teaching us through trials. Sometimes, those lessons come wrapped in diagnoses, discomfort, and detours. But with every step forward, there’s …
5 Sure Tips to Reclaim Health Through Diabetes, Rare Illness and Beyond Read More »
Post Views: 572 Q-1) Could you briefly describe your story? A-1) I was diagnosed with POEMS Syndrome in November 2021. The symptoms were evident and showed up for almost a year. It took almost 6 months for the diagnosis. Many tests followed and consultations to finally get the diagnosis. POEMS syndrome is a rare blood …
Post Views: 722 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. This is my personal story. But it’s about you too. I saved my head a couple of times from a fall from unstable Blood Pressure levels!! Studies show that as of …
Post Views: 552 This blog is another opportunity to feel grateful and thank you dear Universe: You continue to bless me with recovery and overall health. For God’s sake, could we live in a world that is free of unnecessary societal rules, or is it hardwired into our DNA? I am talking about those rules …
Convalescence: Though Forgotten, Yet a Stronger Way to Recover Read More »
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