Blog - Ordinarily Rare

Living in the Haze? Try These 5 Self-Tested Strategies to Beat Brain Fog

Archith's / By Blog / January 12, July 23,

Post Views: 438 Many a time, life hands us challenges that shake our foundations and reshape our perspectives. For me, being diagnosed with a rare neurological condition, Isaacs’ Syndrome, was one such defining moment. This article is not just about the hurdles I’ve faced; it’s about gratitude, awareness, and resilience. It’s an invitation to others …

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Embracing Change with Acromegaly: Resilience and Lessons from COVID‑19

Patient Stories / By Blog / January 7, November 6,

Post Views: 352 Archith’s Note: We all have our own version of the COVID story. For me, as a patient with Isaacs’ Syndrome, the pandemic was a test of endurance and a surprising teacher. This blog is about the silver linings that a rare disease patient, Ebony, found in the midst of uncertainty. She innovatively …

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My Insurance Policies helped me fight my rare and chronic diseases.

How Health Insurance Saved My Life During a Rare Disease Battle

Archith's / By Blog / January 2, October 1,

Post Views: 2,530 This blog is another opportunity to feel grateful. Thank you, Universe, for continuing to bless me with recovery and health. Realizing that almost 85% of your rare medical expenses were covered is a relief. I have a rare and a set of chronic diseases. I had little or no idea that it …

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Familial Hypercholesterolemia: When the Heart Speaks Too Soon

Patient Stories / By Blog / December 22, October 4,

Post Views: 503 A Heart Attack at 28 Most people think heart disease is something that happens in old age. But for Aria, a 28-year-old teacher, her first heart attack came before she even turned 30. She was young, active, and had no obvious risk factors. What she didn’t know was that she was living …

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The Necessity of Water Intake With Medicines

Archith's / By Blog / December 22, November 4,

Post Views: 503 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. It was traumatic to discover, that what was once available at free will needed vigilance. I was asked to measure and consume water as per my prescription. Out of the blue, …

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Seitei: Meaning, Practice, and Health Benefits of Laido

Expert's View / By Blog / December 12, October 11,

Post Views: 696 Archith’s Note: Seitai is a combination of many energy-balancing techniques. It played a transformative role in my own journey with chronic pain. It was one of the therapies that strengthened my confidence in alternative medicine, showing me that healing can come not only from pills and procedures but also from restoring balance …

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4 Ways Helped Me Create A Great Team of Doctors

Archith's / By Blog / December 12, October 18,

Post Views: 924 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. ‘Medicine for sure is a team sport’, and that’s exactly how I perceived it while dealing with my rare disease. This blog talks about how building a dream team of doctors …

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Medicine Management through Systematic Tapering Plan

Why Is The Need For Medication Management?

Archith's / By Blog / December 2, November 4,

Post Views: 461 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. ”It’s time to reduce your medicines following a systematic tapering plan (STP)”. My Neurologist commented after visiting my health status as I looked at him in amusement. Now what’s that? I …

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5 Dynamic Ways Financial Planning Helped Me Afford Rare Medical Treatment

Archith's / By Blog / November 22, October 7,

Post Views: 917 This blog is another opportunity to feel grateful. Thank you, Universe, for continuing to bless me with recovery and health. Everyone dreams of finding a pot of gold at the end of the rainbow, especially when life throws a curveball at us. While neither of those is realistic, what is possible is …

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The Fighting Spirit on Thalassemia

Patient Stories / By Blog / November 12, October 19,

Post Views: 715 My name is Megha, though I never could relate to it. It could have been anything. 🙂 I was diagnosed with Thalassemia a few months over two years, I don’t recall what I experienced at that time. The oldest memories of resistance, are of clutching the bedroom door handle tight, wearing a pink printed …

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