Author name: Blog

Post Views: 914 There are moments in life when everything changes. It is when our body speaks louder than our thoughts, and our health becomes our most urgent priority. For me, that moment came when I was diagnosed with a rare neuromuscular condition called Isaacs’ Syndrome. What followed was a cascade of other diagnoses: Lyme …

From Chaos to Clarity: How Medical Recordkeeping Helped Me Manage Rare Diseases Read More »

Post Views: 590 Now and then, life throws us curveballs. Some are gentle nudges, while others feel like lightning bolts from the sky. For me, it was the kind that turned my entire world upside down. Then, gradually, I began to rebuild it in a way that helped me grow, heal, and, most importantly, understand …

In the Garden of Discomfort Lied The Seed of My Rare Disease Read More »

Post Views: 479 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. The views expressed in this blog post are a matter of personal belief and opinion. My story goes back to the days in 2016 when I was diagnosed with a rare …

How Settling Karmic Debts Help Fight Rare Diseases? Read More »

Post Views: 803 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Each contemporary age group has much to contribute to every sphere of life, isn’t it? Talking about sports, today’s generation is a lot into video games. Even the latest PlayStations promise …

Isaacs’ Syndrome Treatment: How Sports Medicine Changed My Life Read More »

Post Views: 409 Many a time, life hands us challenges that shake our foundations and reshape our perspectives. For me, being diagnosed with a rare neurological condition, Isaacs’ Syndrome, was one such defining moment. This article is not just about the hurdles I’ve faced; it’s about gratitude, awareness, and resilience. It’s an invitation to others …

Living in the Haze? Try These 5 Self-Tested Strategies to Beat Brain Fog Read More »

Post Views: 2,494 This blog is another opportunity to feel grateful. Thank you, Universe, for continuing to bless me with recovery and health. Realizing that almost 85% of your rare medical expenses were covered is a relief.  I have a rare and a set of chronic diseases. I had little or no idea that it …

How Health Insurance Saved My Life During a Rare Disease Battle Read More »