Post Views: 336 Archith Louis is as brave as his name suggests, facing every challenge with remarkable courage. He lives with Morvan syndrome, a rare condition that tests both body and mind, yet he continues to turn his struggles into strength. In this blog, Louis discusses his symptoms and the lessons he has learned along …
13 Extraordinary Ways to Combat Fatigue and Gain Energy Read More »
Post Views: 288 I’m Liam, father to a bright, funny, and determined girl named Orla. She’s 14 now, and if you met her, you’d probably notice her laughter before anything else. It fills a room, and it’s the kind of laughter that makes you forget your worries for a moment. But behind that laughter is …
Aarskog Syndrome: Signs, Supporting Families, and Navigating Rare Diagnosis Read More »
Post Views: 518 Archith Living with a rare neurological condition called Kleine-Levin Syndrome (KLS) can often feel like walking an uncharted path where answers are scarce, treatments uncertain, and hope must be carved out of resilience. Today, I share the journey of a patient from India, Tavish, who has chosen to navigate this path uniquely: …
Natural Hot Springs: 5 Proven Healing Benefits for Rare Diseases Read More »
Post Views: 195 When Jasper was born, I thought my life had found its brightest light. His tiny fingers curled around mine, and I whispered promises of protection, love, and endless tomorrows. Like every mother, I dreamed of his first steps, his first day at school, his teenage years, and the man he would one …
Living with Progeria: My Son, My Teacher and Our Rare Disease Journey Read More »
Post Views: 111 A Breath of Perspective When we think of incurable lung diseases, the first images that come to mind are oxygen masks, hospital corridors, and endless coughing. But… What if I told you that some patient journeys are filled with resilience and even quirky life hacks? This is the story of Chintan, a …
Idiopathic Pulmonary Fibrosis: 5 Ways to Live Joyfully with It Read More »
Post Views: 640 Q-1) Could you briefly describe your story? A-1) Hey I am Ramuna. I was diagnosed with ‘’Polyarthritis” when I was half a year old. My right ankle doesn’t bend over, and my leg is small and thin. In my country Lithuania I was second with polyarthritis. Before I was diagnosed with polyarthritis …
Polyarthritis: Symptoms, Causes, and Effective Treatments for Long-Term Relief Read More »
Post Views: 597 When we talk about rare diseases in India, Fabry Disease often remains hidden in the shadows. Yet, behind the statistics are real people, patients and families navigating pain. This is the story of Dr Divyansh. He is a young doctor whose journey with Fabry Disease shows us why awareness, early diagnosis, and …
Fabry Disease India Story: Inspiring Journey of Courage and Hope Read More »
Post Views: 128 Archith’s Note: I spoke to Oliver and decided to share his story. He showed great strength and honesty while speaking about his journey with Myasthenia Gravis. During our conversation, I was deeply moved by his resilience. The way he continues to live with dignity despite challenges is commendable. His words reminded me …
Myasthenia Gravis Explained: Symptoms, Treatments, and Real Patient Experience Read More »
Post Views: 598 Archith This blogs comes from one of the most gaming-active countries in the world, Philippines. Stats say that nearly all internet users (about 75–86%) play video games, mostly on mobile devices. For most of us, video games are a pastime, a way to unwind, compete, or escape into another world. But for …
9 Proven Mental Health Benefits of Video Game Therapy for Chronic Diseases Read More »
Post Views: 1,201 Q-1) Describe your story? A-1) I was unaware that I had a Cancerous Tumor. Let me tell you that a tumor is a solid mass of tissue. It forms when abnormal cells group together. A tumor is capable of affecting bones, tissue, glands, skin, and organs. Many tumors are not cancer (but …
Cancerous Tumor: 5 Ways How Jennifer Successfully Battles It Read More »
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