Post Views: 468 Archith Louis is as brave as his name suggests, facing every challenge with remarkable courage. He lives with Morvan syndrome, a rare condition that tests both body and mind, yet he continues to turn his struggles into strength. In this blog, Louis discusses his symptoms and the lessons he has learned along […]
Fatigue: The Kind Rest Didn’t Fix Read More »
Post Views: 386 I’m Liam, father to a bright, funny, and determined girl named Orla. She’s 14 now, and if you met her, you’d probably notice her laughter before anything else. It fills a room, and it’s the kind of laughter that makes you forget your worries for a moment. But behind that laughter is
Aarskog Syndrome: The Diagnosis That Left Us Searching for Answers Read More »
Post Views: 577 Archith Living with a rare neurological condition called Kleine-Levin Syndrome (KLS) can often feel like walking an uncharted path where answers are scarce, treatments uncertain, and hope must be carved out of resilience. Today, I share the journey of a patient from India, Tavish, who has chosen to navigate this path uniquely:
Natural Hot Springs: Relief That Didn’t Come from a Prescription Read More »
Post Views: 250 When Jasper was born, I thought my life had found its brightest light. His tiny fingers curled around mine, and I whispered promises of protection, love, and endless tomorrows. Like every mother, I dreamed of his first steps, his first day at school, his teenage years, and the man he would one
Progeria: My Son, My Greatest Teacher Read More »
Post Views: 232 A Breath of Perspective When we think of incurable lung diseases, the first images that come to mind are oxygen masks, hospital corridors, and endless coughing. But… What if I told you that some patient journeys are filled with resilience and even quirky life hacks? This is the story of Chintan, a
Idiopathic Pulmonary Fibrosis: Learning to Live Fully, Even When Breathing Isn’t Easy Read More »
Post Views: 759 Q-1) Could you briefly describe your story? A-1) Hey I am Ramuna. I was diagnosed with ‘’Polyarthritis” when I was half a year old. My right ankle doesn’t bend over, and my leg is small and thin. In my country Lithuania I was second with polyarthritis. Before I was diagnosed with polyarthritis
Polyarthritis: When Pain Moves, But Never Really Leaves Read More »
Post Views: 652 When we talk about rare diseases in India, Fabry Disease often remains hidden in the shadows. Yet, behind the statistics are real people, patients and families navigating pain. This is the story of Dr Divyansh. He is a young doctor whose journey with Fabry Disease shows us why awareness, early diagnosis, and
Fabry Disease: A Story of Living with What Few Understand Read More »
Post Views: 209 Archith’s Note: I spoke to Oliver and decided to share his story. He showed great strength and honesty while speaking about his journey with Myasthenia Gravis. During our conversation, I was deeply moved by his resilience. The way he continues to live with dignity despite challenges is commendable. His words reminded me
Post Views: 736 Archith This blogs comes from one of the most gaming-active countries in the world, Philippines. Stats say that nearly all internet users (about 75–86%) play video games, mostly on mobile devices. For most of us, video games are a pastime, a way to unwind, compete, or escape into another world. But for
Video Game Therapy: Where Healing Didn’t Feel Like Therapy Read More »
Post Views: 1,283 Q-1) Describe your story? A-1) I was unaware that I had a Cancerous Tumor. Let me tell you that a tumor is a solid mass of tissue. It forms when abnormal cells group together. A tumor is capable of affecting bones, tissue, glands, skin, and organs. Many tumors are not cancer (but
Cancerous Tumor: Jennifer’s Fight, One Decision at a Time Read More »
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