Patient Stories

Fabry Disease: A Story of Living with What Few Understand

Post Views: 646 When we talk about rare diseases in India, Fabry Disease often remains hidden in the shadows. Yet, behind the statistics are real people, patients and families navigating pain. This is the story of Dr Divyansh. He is a young doctor whose journey with Fabry Disease shows us why awareness, early diagnosis, and …

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Myasthenia Gravis: When Your Strength Fades Without Warning (And What Helped Me Understand It)

Post Views: 191 Archith’s Note: I spoke to Oliver and decided to share his story. He showed great strength and honesty while speaking about his journey with Myasthenia Gravis. During our conversation, I was deeply moved by his resilience. The way he continues to live with dignity despite challenges is commendable. His words reminded me …

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Video Game Therapy: Where Healing Didn’t Feel Like Therapy

Post Views: 716 Archith This blogs comes from one of the most gaming-active countries in the world, Philippines. Stats say that nearly all internet users (about 75–86%) play video games, mostly on mobile devices. For most of us, video games are a pastime, a way to unwind, compete, or escape into another world. But for …

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Health benefits of Indoor Plants

Plants: I Thought They Were Just Decor. I Was Wrong.

Post Views: 863 Archith I’m delighted to introduce Siddharth, a thoughtful writer from Uttarakhand, India, who lives with Autism Spectrum Disorder (ASD). In his beautifully written piece, “My Green Companions: A Journey of Connection and Health,” Siddharth shares how nurturing indoor plants has become more than just a hobby; it’s a source of healing, balance, …

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Mitochondrial Disease: When Energy Isn’t Something You Can Rely On

Post Views: 868 When My Body’s Battery Runs Low Think about your phone. You charge it all night, but in the morning, it only shows 20%. Annoying, right? Now imagine your body works the same way. No matter how much you rest, you wake up tired. That’s what life with a Mitochondrial Disorder feels like. …

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Lymphedema: What a Doctor Wants You to Understand (and What Actually Helps)

Post Views: 861 Q-1) Could you describe your story? A-1) I am a middle-aged Black woman who has Lymphedema. It is swelling in an arm or leg caused by a lymphatic system blockage. The condition is caused by a blockage in the lymphatic system. Lymphatic is a part of the immune and circulatory systems. Lymphedema …

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Comfort: The One Thing I Didn’t Realize My Body Needed This Much

Post Views: 2,087 Archith’s Note: I’m pleased to introduce Viktor, a writer from Sweden who lives with Epilepsy. In his heartfelt article, “5 Surprising Ways Comfort Became My Best Medicine,” Viktor shares how something as simple as choosing comfortable clothing has become a powerful part of his healing journey. Through his story, he beautifully illustrates …

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