Post Views: 685 Q-1) Could you briefly describe your story from getting diagnosed to having been cured? A-1) After having my daughter, I was put on birth control. I had tried the pill and the Depo shot, both of which made my hormones go all over the place. After dealing with weight gain, mood swings, …
Overcoming IBS: A Powerful Inspirational Journey to Gut Health Read More »
Post Views: 2,690 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. One evening in 2016, I went out for a walk and my life changed irrevocably. I was diagnosed with a rare disease called Isaacs’ Syndrome. Isaacs’ is a neuromuscular health condition …
Facing Glaucoma Head-On: A Guide to Managing the Disease Read More »
Post Views: 2,250 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Can you imagine being on a diet plan with almost no salt and proteins for almost a year? I experienced it post getting diagnosed with Membranous Glomerulonephritis. It is a progressive …
Living with Membranous Glomerulonephritis: 5 Key Lessons Read More »
Post Views: 567 Rachit: – The therapy helped my loss of mobility, and was quite helpful in reducing body pain, boosting muscle strength, improving flexibility, and reducing overall stiffness. Physiotherapy and how it helps in the recovery of rare medical conditions Are you suffering from a health complaint, and are probably wondering whether physiotherapy will …
Physiotherapy Explained: What to Expect & How It Helps Heal Read More »
Post Views: 3,453 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. I was diagnosed with a rare disease called Isaacs’ Syndrome in 2016. Isaacs’ is a neuromuscular health condition that stems from muscle hyperactivity. My lift post-diagnosis underwent a drastic change. Glaucoma also …
Lyme Disease: 5 Effective Ways to Manage and Live Stronger Read More »
Post Views: 444 Today we have someone who simply redefines motivation for many of us. His ability to start, persist, and then perform a task is worth watching. He began the process of developing and making constant efforts. He made sure to achieve his goal. There were many obstacles in his journey, but he kept …
Post Views: 1,149 This blog is another opportunity to feel grateful and thank you dear Universe: You continue to bless me with recovery and overall health. What does it mean to live like someone else when one is diagnosed with a rare disease? It is about my experiences living with Isaac Syndrome. It was challenging for my …
Why Most People Fail at Imitating Others And How Being Yourself Is Great Read More »
Post Views: 5,063 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. I am trying to sleep, and suddenly there goes tick, tick. It went unrested as the frequency was at least once every 30 seconds, and it went on for hours. Life’s …
Becoming Rare Overnight with Isaacs’ Syndrome: My Story of Triumph and Transformation Read More »
Post Views: 985 When Life Gets Stiff (Literally) What happens when you’re told you have an incurable disease? For most people, the word “incurable” feels like a full stop. But here is someone for whom it became a comma. It was just a pause before a new chapter began. Most of us complain about stiff …
Stiff Person Syndrome (SPS): Rare Disease Story of Humor, Hope, and Healing Read More »
Post Views: 2,600 Each day is a fresh opportunity to whisper gratitude to the universe. I do this often. It continues to gift me with healing, not just of the body, but of the soul. What follows is my journey, resilience, and rediscovery. Before the Diagnosis: A Life of Stories Once upon a time, storytelling …
Ordinarily Rare? Finding the Extraordinary Within Read More »
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