Post Views: 1,182 This blog is another opportunity to feel grateful and thank you dear Universe: You continue to bless me with recovery and overall health. What does it mean to live like someone else when one is diagnosed with a rare disease? It is about my experiences living with Isaac Syndrome. It was challenging for my …
Why Most People Fail at Imitating Others And How Being Yourself Is Great Read More »
Post Views: 5,156 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. I am trying to sleep, and suddenly there goes tick, tick. It went unrested as the frequency was at least once every 30 seconds, and it went on for hours. Life’s …
Becoming Rare Overnight with Isaacs’ Syndrome: My Story of Triumph and Transformation Read More »
Post Views: 1,017 When Life Gets Stiff (Literally) What happens when you’re told you have an incurable disease? For most people, the word “incurable” feels like a full stop. But here is someone for whom it became a comma. It was just a pause before a new chapter began. Most of us complain about stiff …
Stiff Person Syndrome (SPS): Rare Disease Story of Humor, Hope, and Healing Read More »
Post Views: 2,633 Each day is a fresh opportunity to whisper gratitude to the universe. I do this often. It continues to gift me with healing, not just of the body, but of the soul. What follows is my journey, resilience, and rediscovery. Before the Diagnosis: A Life of Stories Once upon a time, storytelling …
Ordinarily Rare? Finding the Extraordinary Within Read More »
You cannot copy content of this page