Post Views: 371 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. ”It’s time to reduce your medicines following a systematic tapering plan (STP)”. My Neurologist commented after visiting my health status as I looked at him in amusement. Now what’s that? I …
Post Views: 756 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Everyone dreams of finding the pot of gold at the end of the rainbow although finding either is impossible. The desire for such a discovery has sufficed to power the efforts …
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Post Views: 581 My name is Megha, though I never could relate to it. It could have been anything. 🙂 I was diagnosed with Thalassemia a few months over two years, I don’t recall what I experienced at that time. The oldest memories of resistance, are of clutching the bedroom door handle tight, wearing a pink printed …
Post Views: 718 This blog is another opportunity to feel grateful. Thank you, dear Universe, for blessing me with recovery and health. It’s said that no Recovery Method could replace or cover up for poor diet and lack of rest. Rest can look different for every individual. It could be active or passive in nature. …
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Post Views: 485 Tai chi for Rare Conditions I have been a family physician for over 40 years, and I have treated many people with rare diseases. Also, in my personal life some of my close friends have rare conditions. No matter what the condition or disease is, it is a challenge for anyone. However, …
Post Views: 609 This blog is another opportunity to feel grateful and thank you dear Universe: You continue to bless me with recovery and overall health. Even statistically there would be many doppelgangers out there with similar health situations looking for information to improve their understanding that could put them a step closer to more …
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Post Views: 553 This blog is another opportunity to feel grateful. I thank you dear Universe to continue blessing me with recovery and health. What do you do when life knocks you down? Do you give easy or stand up and start to walk again? A rare disease patient may face challenges that are quite …
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Post Views: 678 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. My research about my rare and chronic diseases began when I was left with a list of unanswered questions!! The purpose of gathering information and knowledge goes beyond textbooks. The idea …
Post Views: 743 Living with a rare disease like Isaacs’ Syndrome is not just a medical challenge. Trust me, it’s a deeply personal journey that reshapes your identity, your relationships, and your outlook on life. As someone who has walked this path, I feel compelled to share my story. It’s not just to raise awareness …
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Post Views: 732 This blog is another opportunity to feel grateful. Thank you, dear Universe, you continue to bless me with recovery and health. Like most of us, I didn’t pay attention to definitions and acronyms outside my work. In 2016, my life changed after getting diagnosed with a rare and a couple of chronic …
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